Saturday, February 16, 2019

Proposing a Contemporary Ars Moriendi


Author:
Anthony Ughetti, MHA
December 2018


Proposing a Contemporary Ars Moriendi

This blog is an outgrowth of my recent MHA Capstone Project with Saint Joseph’s College.  This author contends that significant confusion, inefficiency, and rancor exist in the current state of end-of-life care.  In response, the author proposes a contemporary ars moriendi that can serve as a framework for standardization of end-of-life-care. This can help resolve existing barriers and lead to a “holier” death and dying process for patients, families, and providers. 


Thesis and Call to Action

Although hospice and palliative care services have existed for decades, there remains confusion and contention about what the services entail, when they should be initiated, and what benefits flow from them.  Such confusion negatively impacts the patient and family experience of the dying process and leads to inefficiencies in the delivery process.  This author proposes a solution in the form of a contemporary ars moriendi - a set of rules and guides that can help clinicians, patients, and society better understand end-of-life services.  Moreover, it can promote service delivery in a way that leads to efficiency, cost-savings, and a happy, holy death for the patient.


Ars moriendi?  What does that mean?

This blogger contends that the last time society and the medical profession achieved consensus about the “right way” to pursue the death and dying process was in the 14th century, concurrent with the Black Death plagues and the concomitant explosion in the number of deaths.   Theologians, philosophers, clergy, and caregivers codified a series of edicts and social mores into a coherent document termed ars moriendi, which in English translates to “the art of dying.” Thus, at that time, and for about the next two centuries, a common framework for death and dying was promulgated amongst professionals, laity, providers, patients, and families. In the views of this writer, contemporary society could significantly benefit by returning to a contemporary ars to guide current death-and-dying ministry.


End-of-Life Care in the U.S.:  State of the Art

In contemporary society and medical practice, there is no consensus about ways to achieve a “holy” or “happy” death:
·       Some (Gawande, 2014) contend there is no way to control the end-of-life process: “I am leery of suggesting that endings are controllable”.
·       Others (Brescia, 2017) appear to foster confusion about the difference between hospice and palliative care, as well as when they should be initiated: “Hospice care is more associated more frequently with home care.”  “Palliative care requires continuous presence of doctors and staff”.
·       Still others argue that in contemporary times, “we are able to choose the rituals we perform with our dead, nor do we have to believe what our parents believed” (Order of the Good Death, 2018).

Which view is “right”?  Which is “wrong”?  Who decides?  Can consensus be reached?


My proposal:  An Ars with a Triple Goal

To clear the confusion and promote consensus, the author proposes a contemporary ars moriendi that promotes three primary goals:
·       Uniform naming, branding, and terminology regarding the terms “hospice” and “palliative care”;
·       Promotion of election of the appropriate end-of-life service early in the disease process;
·       Cost savings and improved utilization of medical services in the terminal phase.
Achieving these three goals will substantially improve the death and dying process for patients, families, providers, and society as a whole.


Implications for Health Administrators

I contend that a contemporary ars would impart significant benefits, including the following:
·       Better understanding of the dying process, better symptom control and a greater sense of community and support of all throughout the death and dying process;
·       With the demographics of an aging American population, society will need more efficient and standardized methods to manage the wave of dying older adults;
·       Any efforts that seek to reduce confusion (such as agreeing upon standard nomenclature) and contain costs (such as reducing futile high-cost curative efforts when death is imminent) will benefit the medical industry and society as well;
·       Ultimately, the death process may become more peaceful and “holier” for all if the triple aim of the contemporary ars is realized.





Limitations of this proposal:

The key limitation of this proposal is that it represents only the author’s perspectives. It is   not intended to be a definitive answer.  However, it is hoped that this work will advance the dialogue, generate additional discussion, and further refine and advance the goals proposed by the contemporary ars.

The author is hopeful that such discussions may generate even more new, novel ways of refining the death and dying process - ultimately improving the experience for patients, families, and providers.




Selected Resources/References

Berry, L., Castellani, R., & Stuart, B. (2016).  The branding of palliative care.  Journal of
Oncology Practice.  Doi:  10.1200/JOP.2015.008686.
Brescia, M. (2018).  The nature and treatment of human suffering.  Health Progress July-August
2018: 9-13.
Gawande, A. (2014). Being mortal:  Illness, medicine, and what matters in the end.  London,
England:  Wellcome Collection.
Order of the good death website (2018).  About.  Retrieved from


Wednesday, January 02, 2019

Communications in Patient Safety


The Importance of Communication in Patient Safety
Enhanced communication is at the top of every list when considering how to reduce medical error and improve patient safety. As long as there are failures in communication, whether between individuals or teams, patient safety issues will continue. Patients and their complicated needs, the ongoing shifts in healthcare systems, and explosion of knowledge and technology all contribute to a vital need for strong communication.   Communication effects every aspect of healthcare. Teams, leadership and workplace cultures are impacted by the failures of good communication. These failures are linked to patient safety issues like sentinel events, poor patient experiences, harm to the health care workforce, and resource mismanagement.
Four proven strategies that streamlines communication and engages every healthcare provider at each point of patient care include huddles, rounding, bedside reporting, and hand-off communication strategies.
·       Rounding is a tool used by both leadership and staff to communicate consistently with both patients and staff.
·       Huddles are a best practice that allow communication in the moment to discuss, evaluate and share information either at the beginning of a shift, or when an issue arises.
·               Nurse to nurse bedside reporting is a strong end of shift report mechanism that the literature reflects has a positive impact on patient safety.
·       And finally, strong handoff communication strategies, in particular SBAR (Situation-Background-Assessment-Recommendation), is proven to enhance communication between every caregiver, including physicians, nurses, technicians and leaders.
The ability to have safe, effective conversations to promote a culture of safety cannot be overestimated. This means not only between caregivers, but patients, families and leadership. We must have these conversations respectfully, always looking for ways to encourage honesty in our discussions and feedback, and giving providers the tools to communicate effectively and completion.
Resources
Why Communication is a Patient Safety Issue. The Institute for Healthcare Excellence Website. http://healthcareexcellence.org/2018/03/14/communication-patient-safety-issue/. 2018
About TeamSTEPPS. Agency for Healthcare Research and Quality Website. https://www.ahrq.gov/teamstepps/about-teamstepps/index.html
Develop A Culture of Safety. Institute for Healthcare Improvement Website. http://www.ihi.org/resources/Pages/Changes/DevelopaCultureofSafety.aspx
Malpractice Risks in Communication Failures. CRICI Strategies Website. https://www.rmf.harvard.edu/Malpractice-Data/Annual-Benchmark-Reports/Risks-in-Communication-Failures
Gooch, K. The chronic problem of communication: Why it’s a patient safety issue, and how hospitals can address it. Retrieved from: https://www.beckershospitalreview.com/quality/the-chronic-problem-of-communication-why-it-s-a-patient-safety-issue-and-how-hospitals-can-address-it.html

Wednesday, December 05, 2018

Sharing Hope


Sharing Hope
Valerie J Connor, MA CCC-SLP, MS CHES

The holiday season is often filled with wonder and hope.  Most of us enter this season looking forward to family gatherings, fun activities, and plenty of good food.  However, this is also a time of year that is difficult for many individuals – those going through major life changes or facing difficult illness might have trouble embracing the holidays.  While celebrations abound for some, others start to lose hope.

What is hope?  There are actually two different definitions of hope.  One is “a feeling of expectation and desire for a certain thing to happen.”  The older, more biblical definition of hope is “trust”.  The word “hope” is often referenced in the bible during times of dire circumstances.  Individuals expressing hope not only have expectations and desires, but they also trust their situation will improve despite evidence otherwise.

As healthcare professionals, we meet patients who are experiencing dire circumstances.  Whether it’s a illness, an unfortunate accident, or an emergency procedure, most individuals would rather not choose to seek our services – especially during the holiday season.  When this happens, we are poised with the unique opportunity of providing hope. 

There are several ways healthcare professionals can provide hope in an ethical manner.  Just a few suggestions include:

1.  Communicate effectively.  The most common concern patients express in both acute and rehab care is frustration with communication.  Taking time to keep patients informed is one way to gain their trust and provide hope.
2.  Commit to sit.  Studies have shown that the simple act of sitting with a patient increases their perception of the length of time the caregiver spent with them.
3.  Focus on safety.  Explain procedures that might seem redundant to remind patients their safety is of utmost importance.   
4.  Focus on the human element.  In healthcare, the numbers and data are important, but it’s just as necessary to remember that we are dealing with human emotions.  Keeping this in mind is crucial if we want to give patients hope.

Of course, it’s important not to provide false promises, but hope is not a promise.  It’s trust and assurance that patients can depend on their healthcare team during the worst of circumstances.  This holiday season, let’s not just focus on providing excellent care for patients, let’s also give them hope.